Family Pic Nov 2015

Family Pic Nov 2015

Sunday, May 27, 2012

All about Julia

God has taken this little girl who would have died within a couple of months had we not gotten her and blessed her with a family.   He led us to rescue her.  She is continually showing the world what love, family, and good medical care can do to redeem a life that would have been lost. All glory be to HIM!!
















Julia is doing incredibly well lately, but had some troubles over the winter.  She was having terrible wretching episodes every time she had a bowel movement.  Trying to figure out the underlying cause for these episodes was difficult.  In the beginning she had a fever, so we just assumed she had a stomach bug. But when it continued, we suspected something else.  Her GI doctor did an xray of her tummy and found that she had a lot of stool in her intestines.  They had me give her some pretty hefty doses of Miralax over a 6 hour period of time to clear her out.  Boy was that fun : /  But it did seem to help her.  She was having terrible constipation even though we gave her Miralax daily to help keep her regular.  When she was suffering with this terrible wretching, we were stopping her feedings of Pediasure and giving her Pedialyte.  Then she would be fine.  The GI doctor also switched her to Pediasure Peptide which is supposed to be easier on the stomach.  She had lost about 3 pounds during this time period.  But now that she is doing well on the Peptide formula, along with giving her more Miralax daily, she has gained the weight back.  At her last doctor's visit they said she looked great, had put all the weight back on, and grown another inch in length.  She is in 4T clothes now!  That's pretty good for a 5 year old, who only a little over a year ago was in 18 mo. clothes and 15 1/2 pounds. 

In the beginning of April we had her evaluated by a feeding clinic, physical therapy, occupational therapy, and speech.  There is a long wait (like 6-9 mo.) for the feeding clinic and they said that there is no physical reason for her to eat orally.  She really does NOT do well with anything we give her orally.  Not only does she have trouble, but she really does not like it.  She gets very upset if you push it too hard.  So we have her on the waiting list and will decided what to do when the time comes.  She has her first PT appointment on July 2.  Both the PT and OT therapists said they can't wait to get Julia into the clinic.  They think she has a lot of potential.   So we are excited to start that soon!

One other problem we had been having with Julia is her inability to fall asleep at bedtime.   We would get her ready for bed and put her in her crib and she would spend 3 or 4 hours squealing and screaming in delight before finally zonking.  One problem with this is Julia shares a room with our 4 year old daughter Regan.   And Marina will be joining the girls in this room when she comes home.  Julia will be keeping them up every night.   We tried turning off the night light (even though Regan did not like this) to make it completely dark in the room and took all toys out of her crib.  It didn't matter one bit.  She still happily ranted at the top of her lungs.  I know, its a good problem, right?  But it also seemed to be difficult to get Julia up and going in the morning.  Likely because she wasn't actually falling asleep until around 11 pm, even if we put her to bed at 8.    I did some research and read that some children with neurological disorders can't fall asleep at night because their brain doesn't make a certain neurohormone that puts you into sleep.  So we tried giving her a low dose of liquid Melatonin right at the end of her last feeding for the day.   And it worked.  We get her into her crib with lights out within a half an hour of giving her the Melatonin and she falls asleep very quickly.   And stays asleep : )

Overall, she is now in a very good routine.  Feedings are very regular, she is passing bowel movements with ease, she is happy almost all the time, she loves her toys and her playpen and she continues to grow, gain weight, and get stronger all the time.  What more could we ask for?  She is such a sweet little girl and we are so blessed to be her family.

15 comments:

  1. She is so beautiful, I am just amazed at what love can do. oxox

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  2. So happy to hear an update about her and that things are starting to moving in the right direction!! YAhhh!!

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  3. I love seeing the huge progress she has made. She is GORGEOUS!

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  4. I just don't get it why CHILDREN have to suffer so much! Thank God for people like you and others who adopt. Julia blossomed in her very own family!

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  5. It has been amazing to follow Julia's story! I'm so happy she is doing so well. Thanks for the update!

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  6. She looks fantastic! Isn't that amazing?! And btw, I LOVE Melatonin!!

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  7. Glad to see her doing well! I was wondering if you mind if I used Aarons & Julias before/after they came home pictures for a poster project?

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  8. doing so well...big hugs from New Zealand.

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  9. That is fantastic news! Its incredible how much love can do.

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  10. God is sooo good--Julia is BEAUTIFUL and absolutely amazing! It is awesome to "see" via the blog how much progress she is making. It is clear that God and the love of her family are healing this sweet angel!

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  11. I have a daughter a little older than Julia that spent her first 5 years in a crib in a different country than Julia. I've had her home now for 18 months but we still don't have the sleep thing down to an art yet. My daughter gets very sleepy during the day and then sleeps off and on during the night. I think that part of this is that she spent SO much time in her crib that she could sleep whenever she wanted instead of having constant sleep during the nighttime and/or during a nap. So, she'd sleep a little, play in her crib a little, repeat, repeat, repeat for 24 hours each day. So, perhaps this is also an issue for Julia in her sleep pattern. I'm glad that the melatonin is helping! My daughter can fall asleep pretty easily--staying there is her issue!

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  12. So happy to see Julia is thriving... and that you are on another journey to save another child from the same orphanage. Bless you!

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  13. Sounds like things are going well for her. I was pleased to read your report. You are such an attentive mom. God has given you a great gift in that!

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  14. oh so very glad to read this update on this angel. blessings on all of you!

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